Financial and Economic Aspects of the Problem of Children with Autism Spectrum Disorders Socialization
DOI:
https://doi.org/10.14571/brajets.v17.n1.328-338Keywords:
autism spectrum disorders, socio-economic aspects, social support, pedagogical aspectsAbstract
The relevance of this work lies in the need to create prerequisites for overcoming the gap between the relatively deep development of medical and social, pedagogical, psychological aspects and the slurring in understanding the socio-economic aspect of the problem of socialization of children diagnosed with autism spectrum disorder (ASD). The purpose of this article was to identify, based on the study of modern Russian and foreign studies, those conditions and circumstances that directly or indirectly set the direction and priorities in the formation of the socio-economic base for the socialization of a child with autistic disorder. And of course, this activity cannot be directed only at the child in isolation, it cannot but affect his parents. After all, such a family, in addition to their normal life activities, is also busy raising a “special” child with an ASD diagnosis. It should be taken into account that the socialization of such a child inevitably requires additional moral, physical, and, which for us is an independent subject of research, increased material and financial costs from parents. Final positioning concept is formulated in the paper.References
Belousov, L.V., Khaitova, A.I., Mitin, Yu.D. Reserves for improving the quality of social services and the efficiency of spending budget funds. Foreign experience, Zh-l "Modern Science: Actual Problems of Theory and Practice: Series, Economics and Law, No. 1, 2022. P. 188 - 199.
Bogdanyan E.A. (2014). Social partnership and social service of citizens: branch and constitutional and legal problems, Constitutional and municipal law. 2014. No. 5. S. 76–77.
Volkov, Yu.E. (2003). Social Relations and the Social Sphere, Journal of Sociological Studies. No. 4, 2003. P. 40.
Grinberg R.S., Rubinshtein A.Ya. (2014). Individual & State: An economic dilemma. M.: Publishing house "Ves Mir", 2014.
Dovbnya, S. K., Morozova, T. E. (2019). [On childhood autism incidence statistics] https://nakedheart.online/articles/novye-nauchnye-dannye-ras-vstrechaetsya-u-odnogo-iz-44-detei (Accessed 02/21/2022).
Doroshenko, N.N. (2013). Social service in the implementation of the social policy of the state, Modern problems of science and education. - 2013. No. 6. - S. 979.
Efremova, E.A. (2016). Stages of econometric modeling, Economics and management of innovative technologies. 2016. No. 6 [Electronic resource]. URL: https://ekonomika.snauka.ru/2016/06/12151 (date of access: 12/15/2022).
Knyazeva, E. G. & Lvova, S. D., (2015). Program-targeted approach to the formation and implementation of financial support for a new quality of life for citizens of Russia, Journal of Economics and Entrepreneurship, 2015. No. 10-2 (63-2). pp. 669-671.
Morozov S.A., Chigrina S.G. (2022). Study of the characteristics of families raising children with autism, Autism and Developmental Disorders. 2022. Volume 20. No. 2. P. 78–84. DOI: 10.17759/autdd.2022200209.
Morozov S.A., Morozova S.S., Morozova T.I. (2017). Some features of early care for children with autism spectrum disorders, Autism and Developmental Disorders. 2017. V. 15. No. 2. S. 19-31. doi: 10.17759/autdd.2017150202.
Mukharyamova L.M., Savelieva Zh.V. (2021). Social environment for people with autism in Russia: the problem of accessibility in expert assessments, Human Ecology. - 2021. - T. 28. - No. 1. C. 45-50. doi: 10.33396/1728-0869-2021-1-45-50.
Nedovodieva N.M., Kvitchenko N.A., Leonova M.V. Adaptation and socialization of children with early childhood autism., j-l "Symbol of Science", 2019, No. 1. S. 27 - 36.
Semenov, A.V. (2017). Information openness of social service organizations as a criterion for assessing the quality of social services. Bulletin of Humanitarian Education. 2017, pp. 94–99.
Simanov, R.E. (2008). Formation of the system of social services in Russia, System of values of modern society. - 2008. No. 1. S. 197–200.
Solovyova G. I. (2022). How to establish a system of assistance to a child diagnosed with ASD in Russia? (interview with psychiatrist A. Sabantsev), Journal of Regions of Russia,. No. 12. pp. 25 – 34.
Fakhrutdinov, T. M. & Knyazeva, E. G. (2022). Financial and managerial complexity in achieving universal coverage of medical care for the population of Russia, Bulletin of the Samara State University of Economics No. 7. P. 67-74.
Khaitova A.I., Belousov L.V. (2021). Opportunities for children with autism, zh-l "Social protection". - 2021. No. 3. pp. 70 - 72.
Sheshko E.L. (2022). [On the development and implementation of a federal program to help children with autism spectrum disorders] - Letter of the Ministry of Health of Russia No. 15 – 3, 3753 dated 02.12.22
Spitsberg I. L. (2019). The system of continuous interdepartmental support for people with autism spectrum disorders and other developmental features in the mental sphere, Shpitsberg I.L., Popova M.V., Krivoruchko S.O., ed. Spitsberga I. L. - M.: "Our Sunny World", 2019. S. 4 - 19.
Yakubovich A. I. (2018). [If there is no system…] (Interview with A.I. Khaitova) Media portal “Takie Dela”. December, 2018.
Abolkheirian, S., Sadeghi, R., Shojaeizadeh, D. (2022). What do parents of children with autism spectrum disorder think about their quality of life? A qualitative study. JEdu Health Promot 2022; 11:169. Available from: https://www.jehp.net//text.asp?2022/11/1/169/347187.
Befkadu, Biruk & Adamek, Margaret & Ero, Debebe. (2022). the Financial Challenges of Parents of a Child with Autism in Addis Ababa, Ethiopia: A Qualitative Study. 01.1-7. 10.5281/zenodo.6330294.
Bieleninik, Ł.; Gold, C. (2021). Estimating Components and Costs of Standard Care for Children with Autism Spectrum Disorder in Europe from a Large International Sample. Brain Sci. 2021, 11, 340. https://doi.org/10.3390/brainsci11030340.
Cakir, J., Frye, R. - E., Walker, S.-J. (2020). The lifetime social cost of autism: 1990–2029, Research in Autism Spectrum Disorders, Volume 72, 2020, 101502, ISSN 1750-9467, https://doi.org/10.1016/j.rasd.2019.101502.
Halterman J. S., Montes, G. (2008). Association of Childhood Autism Spectrum Disorders and Loss of Family Income. Pediatrics April 2008; 121(4): e821–e826. 10.1542/peds.2007-1594.
Jamalpour, H., & Derabi, J. Y. (2023). Aesthetic Experience, Neurology and Cultural Memory. Passagens: Revista Internacional de História Política e Cultura Jurídica, vol. `5, no. 2, pp. 340-348, https://doi.org/10.15175/1984-2503-202315208
Jamalpour, H., & Yaghoobi-Derab, J. (2022). A review of the philosophy of aesthetics and art based on theoretical and methodological considerations. Revista de Investigaciones Universidad del Quindío, 34(S2), 426-435.
Goncharova N. A., Merzlyakova N. V. Investigation of import substitution and expansion impact in Russian foreign economic practice by supply chain strategy. International Journal of Supply Chain Management. Vol. 9, no. 2. 2020. pp. 772-778.
Goncharova N. A., Merzlyakova N. V. Food shortages and hunger as a global problem. Food, Science and Technology. 2022 Vol. 42.pp. e70621.
Lavelle, Tara & Weinstein, Milton & Newhouse, Joseph & Munir, Kerim & Kuhlthau, Karen & Prosser, Lisa. (2014). Economic Burden of Childhood Autism Spectrum Disorders. Pediatrics. 133. 10.1542/peds.2013-0763.
Liao, X., & Li, Y. (2020). Economic burdens on parents of children with autism: A literature review. CNS Spectrums, 25(4), 468-474. Doi: 10.1017/S1092852919001512.
Goncharova N. A., Kondratenko I. S., Zamaraeva E. N. Economic mechanism of industrial enterprise resources management efficiency assessment. The Journal of Social Sciences Research. 2018. V. 4. No. 12. Pages 470-477.
Montes, G., Halterman J. S. (2008). Child Care Problems and Employment Among Families With Preschool-Aged Children With Autism in the United States. Pediatrics July 2008; 122(1): e202–e208. 10.1542/peds.2007-3037.
Mugno, D., Ruta, L., D'Arrigo, V.G. (2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health Qual Life Outcomes 5, 22 (2007). https://doi.org/10.1186/1477-7525-5-22.
Ou, JJ. Shi, LJ. Xun, G.L. et al. (2015). Employment and financial burden of families with preschool children with autism spectrum disorders in urban China: results from a descriptive study. BMC Psychiatry 15, 3 (2015). https://doi.org/10.1186/s12888-015-0382-4.
Quilendrino, M.I.O., Castor, M.A.R., Mendoza, N.R.N.P., Vea, J.R. and Castillo-Carandang, N.T. (2022). The Direct Cost of Autism and its Economic Impact on the Filipino Family. Acta Medica Philippina. 56, 9 (May 2022). DOI: https://doi.org/10.47895/amp. v56i9.5005.
Shariati, A., Azaribeni, A., Hajighahramanzadeh, P., & Loghmani, Z. (2013). Liquid–liquid equilibria of systems containingsunflower oil, ethanol and water. APCBEE procedia, 5, 486-490.
Smythe, T., Zuurmond, M., Tann, C. J., Gladstone, M., Kuper, H. (2021). Early intervention for children with developmental disabilities in low and middle-income countries – the case for action, International Health, Volume 13, Issue 3, May 2021, Pages 222–231, https://doi.org/10.1093/inthealth/ihaa044.
Zhao, M., & Wangqian Fu, W., (2022) The resilience of parents who have children with autism spectrum disorder in China: a social culture perspective, International Journal of Developmental Disabilities, 68:2, 207-218, DOI: 10.1080/20473869.2020.1747761.
Zhao, Y.-N., Luo, Y.-N., Wang, X.-Y., Fan, H.-Y., Zhang, R., Zheng X.-Y. (2021). Research on the direct financial burden on with 2-6 years old children having autism families spectrum disorder in China [J]. CHINESE Journal of Disease Control & Prevention, 2021, 25(9): 1085-1090. Doi: 10.16462/j.cnki.zhjbkz.2021.09.016.
Zhou, W., Wu, K., Chen, S., Liu, D., Xu, H. and Xiong, X. (2021) Effect of Time Interval from Diagnosis to Treatment on Economic Burden in Families of Children with Autism Spectrum Disorder. front. Psychiatry 12:679542. Doi: 10.3389/fpsyt.2021.679542.
Downloads
Published
Issue
Section
License
Copyright (c) 2024 Nadezhda A. Goncharova, Alexandrina I. Khaitova
This work is licensed under a Creative Commons Attribution 4.0 International License.
The BRAJETS follows the policy for Open Access Journals, provides immediate and free access to its content, following the principle that making scientific knowledge freely available to the public supports a greater global exchange of knowledge and provides more international democratization of knowledge. Therefore, no fees apply, whether for submission, evaluation, publication, viewing or downloading of articles. In this sense, the authors who publish in this journal agree with the following terms: A) The authors retain the copyright and grant the journal the right to first publication, with the work simultaneously licensed under the Creative Commons Attribution License (CC BY), allowing the sharing of the work with recognition of the authorship of the work and initial publication in this journal. B) Authors are authorized to distribute non-exclusively the version of the work published in this journal (eg, publish in the institutional and non-institutional repository, as well as a book chapter), with acknowledgment of authorship and initial publication in this journal. C) Authors are encouraged to publish and distribute their work online (eg, online repositories or on their personal page), as well as to increase the impact and citation of the published work.